Most people don’t know
much about fibromyalgia. They think that it is just about pain, but there are
so many different symptoms of this illness. When I tell someone that I have fibro, the reactions are different. These are
some of the many comments that I have gotten: “You don’t look sick!” “You just
need to up your vitamin intake.” “Stop eating meat!” “You need to get moving,
and you’ll feel better!” “This woman I know used to have fibromyalgia, but her
doctor cured her.” “Have you thought about acupuncture or meditation?” It can
be very frustrating to say the least.
I just want to be able
to go to bed one night and sleep for five hours straight. I want to be able to
wake up and not have to drag myself out of the bed, tired, aching and stiff. I
want to be able to walk into any room and not forget what I was going to get. I
would like to be able to rest, uninterrupted by unwanted visitors who don’t
take into consideration my illness, or who make light of it.
It is tough
dealing with the issues I face each day. I am trying to live without an income
while my disability is determined by a group of folks that have never met me,
who don’t know my plight, or what I go through daily.
So, when I get a call from someone complaining about having missed a sale, or
some other nonsense I get so disgusted I want to scream. I don’t want to hear anyone’s problems. I am not trying
to be inconsiderate, I just simply don’t want
to hear about your issues. There is nothing I can do to make them better, so
please just spare me.
I have never liked
people just to drop by my house without
calling. I have always thought that was rude and inconsiderate. It is
especially rude and inconsiderate for someone that is sick. There are many
nights I go to bed and don’t wash my dishes. There are days where I don’t feel
like putting on clothes, or straightening up the house. There are days where I
just don’t want to be bothered with anyone. So, don’t come to my house and
expect me to answer the door if you didn’t
call me first. I have enough on my plate handling me…I can’t handle me and you
both. Sometimes I am just depressed, and
I don’t have to give an explanation about why.
So, fibromyalgia is
more than just pain. It’s sleepless nights. It’s restless mornings. It’s fibro
fog or forgetfulness. It’s depression. It’s stressful. All I ask is for some kindness, consideration, and understanding.
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